Why is SHE parking there?

It's 1993.  As you head to your college class, you see that funny brown-headed girl trip going up the stairs.  You giggle to yourself and are thankful you are not as clumsy as her.  You saw her tripping earlier that day.  You say something to her about watching her step.  She just smiles and laughs and says something about not trying out for the dance team anytime soon.

It's 2009.  As you make your weekly trek to Target, you see that girl from college again.  She is in her mid-thirties now and you are surprised to see her get out of the car in the handicapped parking spot.  She doesn't look handicapped to you.  You remember her being a little clumsy, but handicapped?  Please.  You are wondering where she was lucky enough to snag one of those handicapped parking placards.  You ask her because you are feeling cantankerous and grumpy.  She just smiles and laughs and says something about finding it on sale at the dollar store.

It's 2011.  At lunch, you see the same girl again.  This time she is eating with her teenage son.  As you head toward the ladies room, you see that she is doing the same.  She is swaying a bit, though, and you shake your head in disbelief.  What type of girl gets drunk with her teenage son at lunch?  Because you are still cantankerous and grumpy while the two of you are washing your hands, you ask her if she always gets drunk with minors.  She just smiles and laughs and says something about it being one of her favorite hobbies.

You never see the girl again.  She comes to your mind on occasion when you see other seemingly able bodied people emerge from handicapped parking spots or drunks.  You are sooooo glad you are not like them.

You are wrong.

That girl is my friend.

She has Multiple Sclerosis.
From the National MS Society: Multiple sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease.
She noticed problems when she was in college on a scholarship.  At 18, she lost the feeling in her feet but gradually regained the ability to walk.  She married that same year.  For 3 years, she was symptom-free until she gave birth to her beautiful son.  In October 1, 1996, the "most horrible day" in her life, she was formally diagnosed with MS while alone with a cold physician who carelessly dropped the heartbreaking news on her.  Just prior to receiving the news, her husband had to step out with their infant son.  Since that time, she has dealt with blurry vision, blindness, difficulty walking, excruciating pain ("Imagine your worst day of pain.  That is my best day"), chemotherapy treatments, the inability to take effective pain medication, double vision, inability to be out in the hot sun for long, fatigue, not being able to jump, ride a bike, hike, and rock climb, loss of independence, loss of a dear friend with MS who took her own life and ridicule from others.

Yet she still smiles and laughs.

She does not take all the credit for her outlook on life. The spotlight is often diverted to her husband, her best friend and constant supporter. Because he "does not believe in people wasting their lives", he often gives her a set amount of time to "whine and complain" about her day and then they move on. "If he allowed me to keep complaining, I would fall into a deep depression".  She also gives much credit to the support and love she receives from her son, her parents and her friends.

She actually feels that MS has been a blessing in her life.  Although her life took a dramatic turn at such a young age, she is not bitter about it.  Instead she encourages all of us to not take life for granted.  "Don’t say you will do something tomorrow because tomorrow may not come.  Don’t wait until later to say you’re sorry .  Don’t wait to hug.  Don’t go to bed angry because you may not wake up."  She radiates beauty, love and light.  It is no wonder that her teenage son loves being around his parents.  He is a very responsible and giving young man who is also a very successful musician, rock climber and in the top 8% of his class. 

Since this blog is dedicated to humor, I thought my friend was the perfect source for understanding the importance of smiling and laughter in the midst of a hurting world full of pain, loss and regret. I see her time and time again enjoying life, encouraging others, hugging her son, laughing with her husband, making jokes and I wonder how she smiles through it all. She loves people. She wants to be around them and she feels if she were to become gloomy and succumb to how she feels inside, people would not want to be around her. She never wants pity. She says she is as happy as anyone else. Somehow, she pushes the pain out of her mind. She ignores it and she focuses on you and the things that you are dealing with in your life.

She is selfless.

She is an inspiration.

And I thought you would want to meet her.

For more on MS, donating to research and information about signing up for or donating to The MS Walk For The Cure in October 2011, please click here.


31 comments:

the mrs said... [Reply]

I loved this! I have a friend who has MS, too. This was so well said, well written. Loved!

Melody Granger said... [Reply]

Thank you Kelley. And thank you Kelly, my wonderful, fuller than life than the majority of mankind, amazingly kind, generous, beautiful, supportive, giving person I know.

My heart hurts from reading this and I actually dropped a tear.

I love you Kelly!

Monkey Man said... [Reply]

I have a cousin with MS. He lives his life as best he can. Sometimes we have to take a pass on the humor to really get our messages across. Well done, my little friend.

Rochelle@AFamilyofLooneys said... [Reply]

Thank you Kelley for this post. It really touched my heart.

Oilfield Trash said... [Reply]

You could not have written about MS any better than you just did. Very well written Kelley.

Shell said... [Reply]

She sounds inspiring, to still be able to laugh through all that. Especially the people who judge w/o having a clue.

I still remember the dirty looks that my baby brother and I would get when we would park in a handicapped spot back when he was 18. People just saw two "kids" who must be taking advantage of their parents'or grandparents' handicapped sticker- when it really was for him and if I he couldn't lean on me, he couldn't make it from the handicapped spot to the door(he doesn't have ms, but just saying I know the feeling of the looks)

Crystal Pistol said... [Reply]

Beautifully written. Heartbreaking. I loved it. Reminds me never to judge another. I have no idea what that person might be facing.

I admire your friend's courage and positive attitude.

Allison said... [Reply]

Thanks for this post, Kelly. My sister-in-law is battling MS as well.

XLMIC said... [Reply]

This is such a beautiful tribute to the strength of your friend :) The world is full of 'judges' who have no clue. Best wishes to your very amazing friend!

Leighann said... [Reply]

MS has been in my life through my Uncle, my aunt, and a friend.
This post gave me goosebumps.
Your words need to be shouted from the highest building!
Your friend is an inspiration to everyone fighting.
I am thinking of her.

C Lo said... [Reply]

I laughed and cried. <3

MOMmetime said... [Reply]

You Rock! this is such a thoughtful tribute to your friend...I feel inspired! I have a friend diagnosed with MS and she too is an amazing woman.

And you are correct ~thank you for sharing her story.

Yvonne said... [Reply]

What an wonderful tribute to your friend! We should all take that lesson from her: To live life, to enjoy it, to love and always, to laugh!

Anonymous said... [Reply]

I love you Kelly! You are an inspiration to all!
Nannette
XXOXOX

Aimee said... [Reply]

Kelley, this is beautifully written. Your friend is such an inspiration. I'm proud of you for making people think for a minute. We all need to take a step back sometimes. Great job!

Ruth said... [Reply]

You captured the spirit of our sweet Kelly so beautifully! Thank you so much for telling her story.

Cheeseboy said... [Reply]

I think everyone knows someone affected by MS. Your friend sounds a lot like the friends I have too. The strong hearted and valiant always seem to be stricken first by MS.

Anyway, what a great friend you are in helping the cause. I have given to MS this year and we always give clothes when they come around. I hope a cure is not too far off.

Linds said... [Reply]

My sister has MS, diagnosed last year. They caught it early and have been able to slow the development with a lot of strong medicine. We did the MS walk last year for/with her, and will do it again coming up soon. I really love this post and it has inspired me to write about my sister on my blog tomorrow. Can I link this post?

Kimberly said... [Reply]

This is the post I needed today. I don't have life threatening MS but I do have chronic pain and I'm stuck in this "woe is me. I'm thirty and my back is clocking at 110 years old" blah blah....I needed this post.

W.C.Camp said... [Reply]

Eloquent as always Ms. Kelley. I have a friend who is an air traffic controller with the disease. She too has been an inspiration in the incredible dignity and sense of humor displayed, even in the face of a relentless disease. Nice post. W.C.C.

Deborah said... [Reply]

You are a sweetheart to write this.

All of us have had this disease touch our lives and I like that you have put it in the spotlight for us to see more clearly.

smooches.

LL Cool Joe said... [Reply]

What a beautiful story, I'm so glad I came here to read this. I admire anyone who lives with a crippling illness and yet still remains happy and positive. Inspirational.

Julie said... [Reply]

I have a friend with MS and another with Parkinson's. Their symptoms - like your friend's - are not obvious enough for strangers to interpret right away; little sway or tremor now and then.

As you wrote, they truly are inspirations; a reminder of what's important; a contrast to people who go about their days complaining about problems of little consequence.

This was beautifully written, Kelley. Your post puts a face to MS, makes people smile and think. A lovely tribute to your friend.

Marjorie said... [Reply]

:( this post almost made me cry. It is so true, my aunt had MS and suffered from it most of her life, she was in a nursing home by the age of 30 and it took her life around 40. But she was just like you described. Selfless. An inspiration. Always telling us and showing us to not take life for granted.

KLZ said... [Reply]

And somehow you become more of a badass with every post. I'm glad you are this proud of your friend.

Kristen said... [Reply]

I love this post!!! The hubby has MS, so I can relate!! Believe it or not, it has made our marriage stronger....

The Empress said... [Reply]

I have a friend, whose daughter has something similar to MS.

She has MG, and is misjudged for being drunk with her slurred speech.

It's very sad...

The Flying Chalupa said... [Reply]

Lovely post, Kelley.

I often think to myself, man, there's no way I could deal with something like that. How do people do it? Where do they find the strength? But I suppose when life takes a turn like that, you dig down and find a way to carry on.

Your friend has obviously done that and more. Kudos to her. She truly is an inspiration.

Debbie said... [Reply]

Such a lovely thought provoking post. People ARE quick to judge. I admit to doing the same especially at Handicapped parking spots. Thanks for this great post.

MarytheKay said... [Reply]

I suspected from the very beginning of your post the girl might have MS... One of my dearest friends has MS. Wonderful post!!!

Erin I'm Gonna Kill Him said... [Reply]

Good one, Kel. Makes you think twice.

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Comments make me feel like I'm not talking to the wall. Don't get me wrong. I love talking to walls. Some of my best friends are walls. Still, I like hearing from you, so thanks!

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